Crazy
1 month agoWe have had a crazy busy week. Monday, of course, we were at the clinic all day. Everything went very well. Robin got vincristine through her port and methotrexate through her spine. I don’t think I will ever get used to that feeling of putting her to sleep. I held her on the table in the operating room and felt her body go limp. Laying her gently on the white table, kissing her, and walking away is very, very hard. It brings me to tears every time and I hate it. I sit nervously in the exam room and wait for someone to tell me she is okay. The waiting is torture. But on Monday, like every time before, she was okay.
She woke up as soon as I arrived in the recovery area. Our neighbor, Rosanna, is one of the nurses in the clinic and she was overseeing Robin’s care that day. It is so nice to have an even more familiar face there. It is comforting to me and to Robin. As soon as Robin woke up, she asked for a drink. She settled in with apple juice, and the packed lunch we had brought from home.
All of Robin’s medications were increased because she has grown so much! Between August 30 and Monday, she grew 3 cm! She is 34.8 lbs and 39.8 inches. It seems like it took her forever to crack 30 lbs, but she keeps growing. This is a very good thing!
She started her steroid pulse on Monday night. As expected, she is very tired and is napping every day. She is also very hungry so we work hard to meet her needs, attempting to make sure she eats nutritionally, but even that is a challenge sometimes.
On Wednesday, the 4 of us stood in line for 3.5 hours to get the H1N1 vaccine. Can you believe it? Children’s Hospital, which is one of the hospitals that TESTED the vaccine earlier this year, still doesn’t have it. The City health clinics had a small amount of it so we decided to try our luck. I am really glad we got it, especially as we anticipate 2 upcoming trips (FL and DC in November).
I am so behind on everything I want to say and all of the pictures I want to post. There is just so little time in the day to get it all done. So I will end this even before I am ready to, but work responsibilities call. Maybe one day I will finally feel caught up, but probably not.
Sara
